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Needs & Goals

1 in 2,700 children is stricken with congenital hypothyroid disease, the effects can be harmful to their health and hinder their quality of life.

CHU Sainte-Justine is a unique institution. Not only is it the largest mother-child centre in Canada, it’s also the second health centre of its kind in North America. Thanks to the dedicated work of Dr. Guy Van Vliet over the past 10 years and the contributions of Dr. Johnny Deladoëy since 2008, the CHU Sainte-Justine remains a world leader in Congenital Hypothyroid Research.

Until the support from Girafund, the CHU Sainte-Justine did not have adequate resources to make the kind of research headway they would have liked.

The urgent need for financing is to better understand the cause of congenital hypothyroidism in order to propose more advanced screening so that treatment can begin within the first minutes of life, and even in-utero in more severe cases.

The lack of immediate intervention can lead to irreversible intellectual disability. This can be so easily avoided with the right detection and care. A better understanding of this disease and early detection can lead to more effective treatment. The research at the CHU Sainte-Justine is all encompassing and also covers acquired hypothyroidism, hyperthyroidism and thyroid cancer in children.

Leverage

Without private financing it is diffcult to obtain research grants.

In 2013, Dr. Deladoëy obtained a prestigious grant of CAN $337,338 from the CIHR (Canadian Institutes of Health Research) which will be paid incrementally each year until 2017.

In 2014, Dr. Deladoëy also obtained a prize and grant of CAN $20,000 from the Dr. Charles Hollenberg Young Investigator Award from The Canadian Society of Endocrinology and Metabolism (CSEM).